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Title Registry-based stroke research
Course number 3082
Programme Kardiovaskulär forskning
Language English
Credits 1.5
Date 2018-11-26 -- 2018-11-30
Responsible KI department Institutionen för medicin, Solna
Specific entry requirements Grundläggande statistiska kunskaper
Purpose of the course Registry-based research can provide excellent ""Real Life"" data and with the Swedish personal identity code and linkage of different registries it can be a gold mine of information. The aim of the course is to provide course participants with an orientation to registry-based stroke research and registers to be used in stroke research. Understanding the possibilities but also the limitations is important, as ethical issues that are coupled to this form of research.
Intended learning outcomes - Knowledge of the various large registries and the strengths and weaknesses of these,
- Knowledge of commonly used statistical methods used in registry based research,
- Ability to, from a specific research question, select relevant variables in relevant register,
- Ability to identify suitable statistical method to address the research question,
- Ability to discuss strengths and limitations of registry based research in general and in relation to their own research question,
- Ability to discuss ethical problems in connection to registry based research.
Contents of the course The course will provide course participants with an introduction to registry based stroke research, provide an overview of registries available in Sweden (quality registers, health data registries held by the Board of Health and Welfare, as well as regional administrative data sources), how linkage is done, what permits are needed and what laws and regulations that govern this area. Furthermore, variables in the most commonly used registries and how these have changed over time, different statistical methods and approaches will be discussed as well as ethical aspects of registry based research and how to evaluate the results from observational registry based studies.
Teaching and learning activities The first part of the course is internet based (web lectures, reading material, preparing seminars)
Lectures: on campus and on the web
Seminars will be held during the on campus part of the course
Individual work: Presentation and discussion of assigned individual work
Compulsory elements The participants must attend the seminars and the oral exam. The students who have missed these sessions can book extra session time within 4 weeks to compensate the absence.
Examination Written examination and oral presentation of a registry based study (designed to answer a research question given by the examiner).
Literature and other teaching material Teaching material will be mailed out at the time of acceptance to the course. Resources: https://www.registerforskning.se/
Number of students 8 - 20
Selection of students Selection will be based on 1) the relevance of the course syllabus for the applicant's doctoral project (according to written motivation), 2) date for registration as a doctoral student (priority given to earlier registration date).
More information The first two days of the course is based on individual work of the student, watching filmed lectures, preparing seminars and study the litterature. Wednesday to Friday of the course is on site on Karolinska, Solna.
Additional course leader Annie Palstam, Göteborgs Universitet.
Latest course evaluation Not available
Course responsible Mia von Euler
Institutionen för medicin, Solna

Mia.Von.Euler@ki.se
Contact person -